Between the two of us my partner and i often laugh at how life will be when we are old and senile with him not being able to see and me being powered by a battery we make quite the pair ! This week just marked another stressful week of the calendar with being told Aaron's transplant showing early signs of rejection. Thankfully we were seen by a cornea specialist who found a broken stitch that was causing all the irritation and an infection. A quick day procedure to remove the stitch. Phew I also got a call from the cardiovascular centre to say I'm receiving the new updated home monitor. I will now be able to bluetooth my pacemaker info to my phone which gets downloaded by the clinic every night. I've now reached robot update 100% with bluetooth, download features and constant monitoring. Last Saturday i spoke at the Women & Children's for HeartKids Education day, helping parents to transition their teenage heartkids into the adult health care system. Person...
Born with an ASD, VSD & leaky mitral valve ive had 3 open heart surgeries at age 5,18 & 26. I now have a mechanical mitral valve as well as 100% pacemaker dependant due to complete heart block. This is my story of life with Congenital Heart Disease and hope my experiences can educate, create awarness and help others living with a life-long illness